About Noel Resor
In February 2015, Noel received her kidney transplant. Almost immediately, symptoms of her FSGS returned and she continues to battle this disease. Support for transplant-related expenses continues. Your help is needed. Please donate today.
Diagnosis [May 2013]
I had gone to an after-hours clinic to evaluate the water retention, or edema, I was experiencing. Some tests were done that were going to my normal doctor, so a decision on treatment could be made. My doctor called my dad the next day. It wasn’t a long conversation but about halfway through, my heart sunk. I could only hear my dad’s side but there was something in his voice and I just knew, we had to go to Riley Hospital for Children in Indianapolis, IN. I had a kidney biopsy done. This was the first thing added to my surgical history. A couple days later, we were told I had FSGS, or Focal Segmental Glomerulosclerosis.
Focal Segmental Glomerulosclerosis is very uncommon for female children, and it is five times more likely that it will affect older, African American males. Focal Segmental Glomerulosclerosis (FSGS) is a rare disease that attacks the kidney’s filtering system (glomeruli) causing serious scarring. FSGS is one of the causes of a serious condition known as Nephrotic Syndrome. It is most common that children in Noel's situation would have at least one kidney transplant, with nearly 40% having the condition return after surgery.
The first course of action was to try and save Noel's kidneys with doses of steroids. Noel wrote: "Now, having a teenage girl and adding steroids to her system is like literally giving her emotional fits in pill form. I was always crying and snapping at people. I always felt bad later." Unfortunately, about four months later, the doctors made the difficult decision to shut her kidneys down and placed her on dialysis.
Dialysis [September 2013]
Dialysis is much easier to deal with than the steroids. Noel's type of dialysis cycles overnight while she slept. "I feel better than I have in months and have tons more energy and positive feelings! Now, we are working towards transplant and hopefully, my life will be even easier," wrote Noel in spring 2014.
Transplant [February 2015]
On Sunday, February 1, the call the family had been waiting for rang. Noel and her family left Fort Wayne in the afternoon to prepare for the February 3rd transplant. Surgery went well and recovery began. Prayers that the FSGS would not attack her new kidney also began. Unfortunately, symptoms returned a few months later.
Continuing the Fight - Be a Ray of Hope for Noel
Six months after her transplant, Noel continues to fight to overcome the FSGS. Once the insurance company approved a new drug, which is both costly and takes several months to see the results, she has continued to battle fatigue and edema.
Follow the blog posts for the most recent updates.