About Noel Resor

In May 2013, I was diagnosed with kidney issues. It’s insane to look back at all that’s happened now, only eight months later. See, I’m having trouble even knowing what to say because before I got sick, I had such an incredibly boring life. I thought there was no way that at any time, someone would want my story. But here I am, so why not just dive in? 

 

Diagnosis

I had gone to an after-hours clinic to evaluate the water retention, or edema, I was experiencing.  Some tests were done that were going to my normal doctor, so a decision on treatment could be made. My doctor called my dad the next day. It wasn’t a long conversation but about halfway through, my heart sunk. I could only hear my dad’s side but there was something in his voice and I just knew, we had to go to Riley Hospital for Children in Indianapolis, IN. I had a kidney biopsy done.  This was the first thing added to my surgical history. A couple days later, we were told I had FSGS, or Focal Segmental Glomerulosclerosis.

 

Focal Segmental Glomerulosclerosis is very uncommon for female children, and it is five times more likely that it will affect older, African American males. Focal Segmental Glomerulosclerosis (FSGS) is a rare disease that attacks the kidney’s filtering system (glomeruli) causing serious scarring. FSGS is one of the causes of a serious condition known as Nephrotic Syndrome. It is most common that children in Noel's situation would have at least one kidney transplant, with nearly 40% having the condition return after surgery. 

 

Treatment

The first course of action was to try and save my kidneys with doses of steroids. Now, having a teenage girl and adding steroids to her system is like literally giving her emotional fits in pill form. I was always crying and snapping at people. I always felt bad later. Unfortunately, about four months later, the doctors made the difficult decision to shut my kidneys down and put me on dialysis.

 

Since September 2013, I’ve been on dialysis. It really is the best place I could be right now. It is much easier to deal with than the steroids. My type of dialysis just cycles overnight while I sleep. I feel better than I have in months and have tons more energy and positive feelings! Now, we are working towards transplant and hopefully, my life will be even easier.